ozED Ectodermal Dysplasia

BACKGROUND The term Camphrence is a combination of Camp and Conference. The first Camphrence was held in 2005 in Maldon VIC. The first Camphrence saw a small group of families come together meet, share ideas/knowledge, make life-long friends, enjoy some fun activities, and listen to guest speakers. ozed – YouTube

WHO CAN ATTEND?   Everyone is welcome. We encourage all family members to attend as we understand not only the person with ED is affected and no one wants to miss out on all the fun. We organise activities for all ages.  

HOW OFTEN, WHERE, HOW LONG?   Camphrences are held every year in a different state (see Schedule) and are for 4 days 3 nights. Day visits can be arranged if families are unable to attend for the full time.

WHAT YOU WILL TAKE AWAY  

Friendships
Knowledge
Information
Memories
Just to name a few.  

COST   Camphrence cost includes 3 nights accommodation (in school camp type facilities), all meals (dietary requirements included), presentations and all activities. $100 per person for members $390 per person for non members

PAST CAMPHRENCES   ozED through the ages – YouTube  
2005 – VIC – Maldon
2006 – VIC – Portsea
2007 – QLD – Tuchekio, Sunshine Coast
2008 – WA – Point Walter, Perth
2009 – VIC – Portsea
2010 – QLD – Kindilan, Mount Cotton
2011 – NSW – Galston Gorge
2012 – QLD – Warrawee, Brisbane
2012 – VIC – Oasis,
2014 – SA – Mylor
2015 – WA – Point Walter, Perth
2016 – NSW – Galston Gorge
2017 – QLD – Tallebudgera, Gold Coast
2018 – VIC – Oasis
2019 – QLD – 15 year Gala Celebration at Tangalooma Island Resort
2020 – Cancelled due to COVID  
2021 – South Australia – Cancelled due to COVID

SCHEDULE

2022 – WA – Perth – Point Walter Sun 2/10/22 to Wed 5/10/22

2023 – NSW Place/Date TBA

2024 – VIC Place/Date TBA (20 years of Camphrences – minus 2020 for COVID)

2025 – QLD Place/Date TBA