Our Vision – ‘To embrace and empower a nurturing Ectodermal Dysplasia community through advocacy, support and connection.’
OzED is a charity registered with the Australian Charities and Not-for-profits Commission. We are a NOT-for-Profit support group here for families & friends who have or know someone with Ectodermal Dysplasia. We are one massive family dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia (ED). Together we support people who have ED & their families, to increase awareness and understanding, and assist with the day-to-day management of ED in a social environment.
We have families all over Australia.
The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth.
When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.