United States of America

National Foundation of Ectodermal Dysplasias' (NFED)

www.nfed.org

United Kingdom/England

United Kingdom Ectodermal Dysplasia Society

www.ectodermaldysplasia.org 

Canada

Ectodermal Dysplasia Society of Canada

www.edscanada.org 

Netherlands

Ectodermal Dysplasia - Netherlands  

France

Association Francaise des Dysplasies Ectodermiques                                     

www.afde.net 

Italy

Associazione Nazionale Displasie Ectodermiche (ANDE)

web.tiscalinet.it/associazione_ande

Germany

Selbsthilfegruppe Ektodermale Dysplasie                                 

www.ektodermale-dysplasie.de 

Sweden

Svenska ED-foreningen

www.svenskaed.se 

Spain

Asociacion de Afectados por Displasia Ectodermica (aade)

www.displasiaectodermica.org 

Turkey

http://www.ektodermaldisplazi.com

Australian Support Networks

Genetic Support Network Victoria

The team at G.S.N.V. have been a great help in establishing ozED and their support and dedication is appreciated.  Their service information is available through the web link below...

www.gsnv.org.au

Genetic Support Council of Western Australia

The team in Western Australia hold a wealth of knowledge.  ozED have found them very keen to assist us and we recommend you visit their site and view their services first hand.

www.geneticsupportcouncil.org.au 

Association of Genetic Support of Australasia (AGSA - NSW)

The New South Wales genetic support group.

www.agsa-geneticsupport.org.au