This page gives a brief outline of the disorder and the outcomes and effects that it may have on the individual dealing with the disorder and their family. Members are able to download this information from the members page.
Ectodermal Dysplasia Information
There are family days organised for each state with the intention of getting all the members from that state to come along for an informative and fun day that includes all the family. New family days to be announced soon. See the events page for more information. The Dates for the 2011 Family days are yet to be set so keep checking for updates that will be made soon.
The Campherance for 2011 is currently being organised. the camp will take place at Crusaders Conference and Recreation Centre, located at Galston Gorge near Sydney.
The ozED 2011 Campherance will be held on the 7th - 9 October 2011.
For more information on the campsite, visit Crusaders website here.
Here you will find photos of the kids and their families at the camps and family days to show you just how much fun we have, as well as showing how we encourage the kids to cooperate with one another. As well you will find photos that show just how this disorder manifests itself. Some of the images may be confronting.
Photo's from our very successful 2007 camp help earlier this year will be added shortly so watch out for the smiles on everyone's faces as they enjoy a great get together and bonding experience.
ozED is pleased to release a range of apparel with the ozED logo.
Items of clothing include polo tops and shirts in both men and women’s style.
Orders and a request for quotes must be placed directly to ozED.
Planet Embroidery must have ozED’s permission to produce the items and therefore any direct orders will not be filled. The ozED price on these is POA.
To see the style of clothing please go to http://www.planetembroidery.com.au/.
Once you have chosen the item(s) you would like to order – either phone 03 9755 5626 or email info@ozed.org.au and we will contact you with a price. Non-ozED members are eligible to order. At the time of your quote we will advise you of the turn-around time on the order.
Those that have ordered already, please have a look at the styles and let me know if there are any changes to your order.